I remember when Jayne was born, a few different people told us that we were lucky. After getting such a big shock and crying for three days straight, I must admit, I didn't feel very lucky. I felt a lot of things--fear, worry, sadness, denial, hope--but lucky was not one of them. There was love though--love for this new little baby that Don and I both knew we would do anything in the world for. Each time we held her, it grew and grew. But, unfortunately, we were both so scared and worried, I think it kept us from feeling lucky...
As time went on, Don and I hoped we were lucky. Jayne was healthy and was doing so well reaching all her milestones, at the same time our other kids did and sometimes even earlier. We hoped that the chromosome test was wrong and that Jayne would be no different than Elle and Easton. We thought we just might be lucky and maybe Jayne could be "normal." (I really don't like that word now.)
Jayne's development slowed down...other babies younger than her started to crawl and walk. The hurt that I buried deep down inside, it came back. It was real. The test was right... Jayne has Down syndrome. Real acceptance began...
The funny thing though is that once I finally started to accept it-- finally stopped trying to convince myself that Jayne was no different than Elle and Easton,--it was then that I realized how much beauty there is in all those differences. I was finally able to just enjoy Jayne. I was so worried about getting her to the next milestone so that I could prove she was going to be ok, that I think I missed some of the joy along the way. I spent way too much time worrying and not enough time just taking in all her goodness--that amazing sweetness that ALL babies have.
And then one day I woke up and I realized that I had finally made it! I found my "lucky" place again! I felt lucky--lucky to have Jayne, lucky to have three amazing children and a husband that are perfect for me, lucky to have learned all that I have learned, lucky to finally be able to sit here and write "Jayne has Down syndrome" and be okay with it all.
I think everyone deserves to feel a little lucky...
Poppa writes so perfectly about his granddaughter Nella, "She is not a mistake to be explained--she is a miracle to be enjoyed. She is not broken, destined to struggle--she is beautiful and destined to soar! Oh the life we are going to share with her...it has only begun. And hopefully, our world is becoming a better, kinder, warmer, brighter garden for all our children to reach their highest dreams within."
Don't let the worries of tomorrow steal you from the joys of today...

