I decided to do a Gymboree class with Jayne. I have done Gymboree "mom and tot" classes with both Elle and Easton and wanted to have that opportunity with Jayne too. The therapists that come to work with her said it would be great for her--all the climbing and playing and just having dedicated one-on-one time. I called Gymboree, knowing what class she should be in for her age, but because Jayne isn't quite walking I wanted to find out if that class would be OK for her still. I told the man on the phone that Jayne has Down Syndrome and wasn't quite walking yet. He was very nice and said, "For our delayed children..." Ouch. My child is delayed. I know that. It hurts though when you hear it out loud. After realizing that the only time that would work is a class with kids ages 16-22 months, I decided to try it out. I figured Jayne is 21 months so she should be fine. The class started in one hour...
We got to the class with all the other moms and kids. First activity-- having the kids push a big rolling cushion while walking. Jayne can't walk on her own so I tried carrying her and helping her push but eventually I just backed away and watched. The tears tried to come but I held them back.
This is for Jayne, I kept telling myself.
It doesn't matter what anyone else does. Then it was time to let the kids just play on all the equipment. Jayne took off crawling up the stairs and then went down the slide head first, on her belly. She loved it! She was having so much fun exploring everything. I helped her climb up a ladder and then climb back down. Then she took off army crawling right through a group of moms watching their kids run around. I could feel their stare on Jayne, probably wondering why she wasn't walking. The tears started to come again. I almost wanted to yell out, "She has Down Syndrome" Most of them probably could tell and just didn't know what to say. Why is it so hard being different? It hurt seeing her with all these kids that were mostly younger doing so much more. Our friends have kids that are Jayne's age and we know that she isn't doing everything that most kids her age are. It stings a little sometimes but friends and family know Jayne and they are so sweet with her so it makes it easier. I know she will do it all eventually. This was different. These people don't know Jayne and because of the nature of the class, Jayne's inability to do things was very obvious.
My child is delayed. Is this how it will feel her whole life? Reality is setting in and it can be harsh...
Then I looked at Jayne--my sweet little girl that I absolutely adore! She was already across the room climbing up on a big cushion laughing and having the time of her life! She loved this class! She didn't care that she couldn't walk or climb a ladder. She would wave and smile at the other kids and she was happy just being there. It hit me. Jayne is happy so why is this so hard for me? Why do I want to cry and run out? Jayne's inability to do certain things yet doesn't matter to her. Jayne doesn't know she has Down Syndrome. Neither do the other kids. It isn't hard for her. It is hard for us because we want her to be like everyone else. Somewhere between being a kid and growing into an adult we all get this funny idea that being different is bad. Everyone is different. We all have different abilities and disabilities. Jayne is Jayne and she is amazing! People always tell us how lucky Jayne is to be part of our family. I believe the opposite.
We are the lucky ones to have Jayne a part of our family. She has already taught us so much and continues to teach me every day. She loves totally unconditionally and can turn anyone's day around just by giving them a hug.
Will I continue the class? Of course I will! Jayne giggled and laughed and had the time of her life. She loved the bubbles and the parachute and singing the silly songs. Jayne will do great things! She already has...